Advanced Pediatric Care™
A guide to support parents caring for a child with a serious or life-limiting illness
Our goal is to help parents give their child the best life possible. That might mean trying to cure the illness, helping the child live longer, or making them more comfortable. You are never alone. A caring team is here to support you and your family every step of the way.
Supporting Your Child, Every Step of the Way
This guide is for parents and families caring for a child with a serious or life-limiting illness. It helps you understand what to expect, how to manage your child’s care at home, and how hospice and palliative care can support comfort and quality of life. The goal is to give families the tools they need to feel supported and confident in their care decisions.
As a geriatric and palliative nurse practitioner and nurse scientist, I have seen how the right intervention, tailored specifically for a person living with dementia and their care partner, can radically improve the experience of caregiving and quality of life. The evidence-based tips in this handbook are grounded in decades of research to improve the care and caregiving of those living with dementia."
Patient & Caregiver Guide
Download your free digital copy today and share with those who need it. Members can access additional pediatric program resources on our Member Portal.
Clinician Guide
Coming soon: Member providers will soon have access to a special clinician guide designed to go hand in hand with the free patient and caregiver guide.
